Year 2019 / Volume 111 / Number 11
Original
Status of transition care in inflammatory bowel disease in Spain. Different medical perspectives

833-838

DOI: 10.17235/reed.2019.6310/2019

César Sánchez Sánchez, María del Mar Tolín Hernani, Guillermo Álvarez Calatayud, María del Carmen Miranda Cid, Víctor M. Navas López, Ignacio Marín Jiménez, Luis Alberto Menchen, Paloma García Fernández, Ana Merino Sánchez-Cañete,

Abstract
Introduction: transition is important for a successful follow-up of adolescents with inflammatory bowel disease (IBD). The objectives of the study were to establish the situation of transition in Spain and to identify needs, requirements and barriers to transition from pediatric and adult gastroenterologist perspectives. Methods: a structured survey for self-completion using the REDCap platform was distributed via the Spanish Society for Pediatric Gastroenterology, Hepatology and Nutrition (SEGHNP) and the Spanish Working Group on Crohn’s Disease and Ulcerative Colitis (GETECCU). The questionnaire contained closed and ranked questions concerning transition, perceived needs, organizational, clinician and patient related barriers to transition. Results: one hundred and forty surveys were answered, 53% in pediatrics (PG) and 47% from adult gastroenterologists (AG) among 90 hospitals; 66% of them were reference centers. There was a higher response from pediatricians (18.2%) versus adult gastroenterologists (8.3%) (p = 0.03). A structured transition program is adequate in 42.2% centers. A well-structured transition was perceived as very important by 79.5% of PG and 63% of AG (p = 0.03). A higher proportion of both groups identified inadequacies in the preparation of adolescents for transfer (43% and 38%, p = ns). The main deficit areas were the lack of knowledge about disease and treatment as well as the lack of self-advocacy and care coordination. Lack of resources, time and critical mass of patients were the highest ranked barriers by both groups. AG and PG (54% and 55%) highlighted suboptimal training in adolescent medicine. Conclusions: in Spain, nearly half of the centers have developed a structured transition program. Lack of training, time and insufficient resources are the main barriers for a successful transition.
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Sánchez Sánchez C, Tolín Hernani M, Álvarez Calatayud G, Miranda Cid M, Navas López V, Marín Jiménez I, et all. Status of transition care in inflammatory bowel disease in Spain. Different medical perspectives. 6310/2019


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Publication history

Received: 31/03/2019

Accepted: 19/05/2019

Online First: 30/09/2019

Published: 07/11/2019

Article revision time: 37 days

Article Online First time: 183 days

Article editing time: 221 days


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