Year 2023 / Volume 115 / Number 6
Editorial
Relevance of patient-reported outcome measures (PROM) and patient-reported experience measures (PREM) to assess disease status and quality of care in patients with inflammatory bowel disease

292-293

DOI: 10.17235/reed.2023.9563/2022

Yamile Zabana, Xavier Calvet,

Abstract
The 21st century has brough us a paradigm shift regarding patients care: the conventional physician-focused model of care has now changed into a patient-centered mode that puts the patient at the center of his own healthcare. Establishing a non-prescriptive and collaborative therapeutic approach, empowering patients to make major decisions on their management, and strict respect to the patient’s autonomy are the major drivers of this patient-centered care. Among other multiple collectives, this change has greatly impacted patients and physicians who deal with inflammatory bowel disease (IBD).
Share Button
New comment
Comments
No comments for this article
References
1. Achleitner U, Coenen M, Colombel J-F, et al. Identification of areas of functioning and disability addressed in inflammatory bowel disease-specific patient-reported outcome measures. J Crohns Colitis. 2012 Jun;6(5):507–17.
2. Arpinelli F, Bamfi F. The FDA guidance for industry on PROs: the point of view of a pharmaceutical company. Health Qual Life Outcomes. 2006 Oct;4:85.
3. Ghosh S, Louis E, Beaugerie L, et al. Development of the IBD Disk: A Visual Self-administered Tool for Assessing Disability in Inflammatory Bowel Diseases. Inflamm Bowel Dis. 2017 Mar;23(3):333–40.
4. Kim AH, Roberts C, Feagan BG, et al. Developing a Standard Set of Patient-Centred Outcomes for Inflammatory Bowel Disease-an International, Cross-disciplinary Consensus. J Crohns Colitis. 2018 Mar;12(4):408–18.
5. Peyrin-Biroulet L, Sandborn W, Sands BE, et al. Selecting Therapeutic Targets in Inflammatory Bowel Disease (STRIDE): Determining Therapeutic Goals for Treat-to-Target. Am J Gastroenterol. 2015 Sep;110(9):1324–38.
6. Stanisic V, Quigley EMM. The overlap between IBS and IBD: what is it and what does it mean? Expert Rev Gastroenterol Hepatol. 2014 Feb;8(2):139–45.
7. El-Matary W. Patient-reported outcome measures in inflammatory bowel disease. Can J Gastroenterol Hepatol. 2014 Nov;28(10):536–42.
8. Dragasevic S, Sokic-Milutinovic A, Stojkovic Lalosevic M, et al. Correlation of Patient-Reported Outcome (PRO-2) with Endoscopic and Histological Features in Ulcerative Colitis and Crohn’s Disease Patients. Gastroenterol Res Pract. 2020;2020:2065383.
9. van der Eijk I, Sixma H, Smeets T, et al. Quality of health care in inflammatory bowel disease: development of a reliable questionnaire (QUOTE-IBD) and first results. Am J Gastroenterol. 2001 Dec;96(12):3329–36.
10. Calvet X, Saldaña R, Carpio D, et al. Improving Quality of Care in Inflammatory Bowel Disease Through Patients’ Eyes: IQCARO Project. Inflamm Bowel Dis. 2020 Apr;26(5):782–91.
11. Calvet X, Casellas F, Saldaña R, et al. Patient-Evaluated Quality of Care is Related to Better Inflammatory Bowel Disease Outcomes: The IQCARO II Project. Patient. 2021 Sep;14(5):625–34.
12. Casellas F, Calvet X, Carpio D, et al. Factors associated with quality of care in inflammatory bowel diseases: a view from patient’s side using the IQCARO quality of care decalogue. BMC Gastroenterol. 2021 Oct;21(1):412.
1. Achleitner U, Coenen M, Colombel J-F, et al. Identification of areas of functioning and disability addressed in inflammatory bowel disease-specific patient-reported outcome measures. J Crohns Colitis. 2012 Jun;6(5):507–17.
2. Arpinelli F, Bamfi F. The FDA guidance for industry on PROs: the point of view of a pharmaceutical company. Health Qual Life Outcomes. 2006 Oct;4:85.
3. Ghosh S, Louis E, Beaugerie L, et al. Development of the IBD Disk: A Visual Self-administered Tool for Assessing Disability in Inflammatory Bowel Diseases. Inflamm Bowel Dis. 2017 Mar;23(3):333–40.
4. Kim AH, Roberts C, Feagan BG, et al. Developing a Standard Set of Patient-Centred Outcomes for Inflammatory Bowel Disease-an International, Cross-disciplinary Consensus. J Crohns Colitis. 2018 Mar;12(4):408–18.
5. Peyrin-Biroulet L, Sandborn W, Sands BE, et al. Selecting Therapeutic Targets in Inflammatory Bowel Disease (STRIDE): Determining Therapeutic Goals for Treat-to-Target. Am J Gastroenterol. 2015 Sep;110(9):1324–38.
6. Stanisic V, Quigley EMM. The overlap between IBS and IBD: what is it and what does it mean? Expert Rev Gastroenterol Hepatol. 2014 Feb;8(2):139–45.
7. El-Matary W. Patient-reported outcome measures in inflammatory bowel disease. Can J Gastroenterol Hepatol. 2014 Nov;28(10):536–42.
8. Dragasevic S, Sokic-Milutinovic A, Stojkovic Lalosevic M, et al. Correlation of Patient-Reported Outcome (PRO-2) with Endoscopic and Histological Features in Ulcerative Colitis and Crohn’s Disease Patients. Gastroenterol Res Pract. 2020;2020:2065383.
9. van der Eijk I, Sixma H, Smeets T, et al. Quality of health care in inflammatory bowel disease: development of a reliable questionnaire (QUOTE-IBD) and first results. Am J Gastroenterol. 2001 Dec;96(12):3329–36.
10. Calvet X, Saldaña R, Carpio D, et al. Improving Quality of Care in Inflammatory Bowel Disease Through Patients’ Eyes: IQCARO Project. Inflamm Bowel Dis. 2020 Apr;26(5):782–91.
11. Calvet X, Casellas F, Saldaña R, et al. Patient-Evaluated Quality of Care is Related to Better Inflammatory Bowel Disease Outcomes: The IQCARO II Project. Patient. 2021 Sep;14(5):625–34.
12. Casellas F, Calvet X, Carpio D, et al. Factors associated with quality of care in inflammatory bowel diseases: a view from patient’s side using the IQCARO quality of care decalogue. BMC Gastroenterol. 2021 Oct;21(1):412.
Related articles
Citation tools
Zabana Y, Calvet X. Relevance of patient-reported outcome measures (PROM) and patient-reported experience measures (PREM) to assess disease status and quality of care in patients with inflammatory bowel disease. 9563/2022


Download to a citation manager

Download the citation for this article by clicking on one of the following citation managers:

Metrics
This article has received 1374 visits.
This article has been downloaded 171 times.

Statistics from Dimensions


Statistics from Plum Analytics

Publication history

Received: 28/02/2023

Accepted: 03/03/2023

Online First: 28/03/2023

Published: 06/06/2023

Article revision time: 2 days

Article Online First time: 28 days

Article editing time: 98 days


Share
This article hasn't been rated yet.
Reader rating:
Valora este artículo:




Asociación Española de Ecografía Digestiva Sociedad Española de Endoscopia Digestiva Sociedad Española de Patología Digestiva
The Spanish Journal of Gastroenterology is the official organ of the Sociedad Española de Patología Digestiva, the Sociedad Española de Endoscopia Digestiva and the Asociación Española de Ecografía Digestiva
Cookie policy Privacy Policy Legal Notice © Copyright 2023 y Creative Commons. The Spanish Journal of Gastroenterology