References
1. Casellas F, Arenas JI, Baudet JS, et al. Impairment of Health-Related Quality of Life in Patients With Inflammatory Bowel Disease: a Spanish Multicenter Study. Inflamm Bowel Dis. 2005 May;11(5):488–96.
2. Ungaro R, Mehandru S, Allen PB, et al. Ulcerative colitis. Vol. 389, The Lancet. 2017. p. 1756–70.
3. Barry MJ, Edgman-Levitan S. Shared decision making--pinnacle of patient-centered care. N Engl J Med. 2012/03/02. 2012;366(9):780–1.
4. Casellas-Jordá F, Borruel-Sainz N, Torrejón-Herrera A, et al. Effect upon hospital activity of the application of a continued care model centered on patients with inflammatory bowel disease [Spanish]. Rev Esp Enfermedades Dig. 2012;104(1):16–20.
5. Santana MJ, Manalili K, Jolley RJ, et al. How to practice person-centred care: A conceptual framework. Heal Expect. 2017/11/21. 2018;21(2):429–40.
6. Colombara F, Martinato M, Girardin G, et al. Higher levels of knowledge reduce health care costs in patients with inflammatory bowel disease. Inflamm Bowel Dis. 2015/01/31. 2015;21(3):615–22.
7. Moradkhani A, Kerwin L, Dudley-Brown S, et al. Disease-specific knowledge, coping, and adherence in patients with inflammatory bowel disease. Dig Dis Sci. 2011;56(10):2972–7.
8. Waters BM, Jensen L, Fedorak RN. Effects of formal education for patients with inflammatory bowel disease: a randomized controlled trial. Can J Gastroenterol. 2005;19(4):235–44.
9. Casati J, Toner BB, de Rooy EC, et al. Concerns of patients with inflammatory bowel disease: a review of emerging themes. Dig Dis Sci. 2000;45(1):26–31.
10. Casellas F, Ginard D, Vera I, et al. Development and testing of a new instrument to measure patient satisfaction with health care in inflammatory bowel disease: The CACHE questionnaire. Vol. 19, Inflammatory Bowel Diseases. 2013. p. 559–68.
11. Griffiths C, Foster G, Ramsay J, et al. How effective are expert patient (lay led) education programmes for chronic disease? BMJ. 2007 Jun 16;334(7606):1254–6.
12. Cohan JN, Ozanne EM, Sewell JL, et al. A Novel Decision Aid for Surgical Patients with Ulcerative Colitis. Dis Colon Rectum. 2016 Jun;59(6):520–8.
13. Eaden JA, Abrams K, Mayberry JF. The Crohn’s and Colitis Knowledge Score: a test for measuring patient knowledge in inflammatory bowel disease. Am J Gastroenterol. 1999;94:3560–6.
14. Jones SC, Gallacher B, Lobo AJ, et al. A patient knowledge questionnaire in inflammatory bowel disease. J Clin Gastroenterol. 1993/07/01. 1993;17(1):21–4.
15. Simian D, Flores L, Quera R, et al. Assessment of disease-related knowledge and possible factors associated with the knowledge level among Chilean patients with inflammatory bowel disease. J Clin Nurs. 2017;26(11–12):1508–15.
16. Danion P, Buisson A, Roblin X, et al. IBD-INFO Questionnaire: A Multicenter French Up-to-Date Survey of Patient Knowledge in Inflammatory Bowel Disease. Inflamm Bowel Dis. 2018/03/06. 2018 Apr 23;24(5):943–52.
17. Nishida A, Inoue R, Inatomi O, et al. Gut microbiota in the pathogenesis of inflammatory bowel disease. Clin J Gastroenterol. 2018 Feb;11(1):1–10.
18. Pineton de Chambrun G, Blanc P, Peyrin-Biroulet L. Current evidence supporting mucosal healing and deep remission as important treatment goals for inflammatory bowel disease. Vol. 10, Expert Review of Gastroenterology and Hepatology. 2016. p. 915–27.
19. Torres J, Mehandru S, Colombel J-F, et al. Crohn’s disease. Lancet. 2017;389(10080):1741–55.
20. Walmsley RS, Ayres RC, Pounder RE, et al. A simple clinical colitis activity index. Gut. 1998 Jul;43(1):29–32.
21. Harvey RF, Bradshaw JM. A simple index of Crohn’s-disease activity. Lancet (London, England). 1980 Mar 8;1(8167):514.
22. Herdman M, Badia X, Berra S. El EuroQol-5D: una alternativa sencilla para la medición de la calidad de vida relacionada con la salud en atención primaria. Atención Primaria. 2001;28(6):425–9.
23. Bolarinwa OA. Principles and methods of validity and reliability testing of questionnaires used in social and health science researches. Niger Postgr Med J. 2016/01/19. 2015;22(4):195–201.
24. Tavakol M, Dennick R. Making sense of Cronbach’s alpha. Int J Med Educ. 2011/06/27. 2011;2:53–5.
25. Hou JK, Turkeltaub JA, McCarty III TR, et al. Assessment of disease specific knowledge and health-related quality of life among United States military veterans with inflammatory bowel disease. World J Gastroenterol. 2015;21(19):6001–7.
26. Yoo YS, Cho OH, Cha KS. Disease-Related Knowledge and Information Needs Among Inflammatory Bowel Disease Patients in Korea. Gastroenterol Nurs. 2014/08/28. 2015;38(6):455–63.